In February 2016, the bottom fell out of Matt and Emma Crawford’s world. Just four days after their son Connor’s 4th birthday, the gorgeous, boisterous, fun loving boy from Hildenborough was diagnosed with a form of Muscular Dystrophy called Duchenne.
Duchenne attacks the muscles and in most cases mobility is lost by the age of 10. It will eventually attack the lungs and heart which will lead to respiratory issues and loss of life around early 20s.
Unfortunately, today it has no cure. However, we are on a mission to #endduchenne by raising vital funds and awareness to accelerate finding a cure to save Connor and boys like him.
If you’d like to join our journey, fighting to save these young boys’ lives, read this powerful and inspiring blog from Connor’s Dad, Matt Crawford, and follow our link to subscribe to our free newsletter. “